Stress-point intervention for parents of repeatedly hospitalized children with chronic conditions

1997 ◽  
Vol 20 (6) ◽  
pp. 475-485 ◽  
Author(s):  
Sharon Ogden Burke ◽  
Mark H. Handley-Derry ◽  
Edith A. Costello ◽  
Elizabeth Kauffmann ◽  
Mary C. Dillon
Keyword(s):  
Chronic Conditions ◽  
Hospitalized Children ◽  
Stress Point ◽  
Children With Chronic Conditions

scholarly journals INTERACTIONS IN THE MANAGEMENT OF NURSING CARE TO HOSPITALIZED CHILDREN WITH CHRONIC CONDITIONS: SHOWING INTERVENING CONDITIONS

2016 ◽  
Vol 25 (2) ◽  
Author(s):  
Thiago Privado Silva ◽  
Ítalo Rodolfo Silva ◽  
Joséte Luzia Leite
Keyword(s):  
Nursing Care ◽  
Chronic Conditions ◽  
Care Management ◽  
Structured Interview ◽  
Physical Structure ◽  
Hospitalized Children ◽  
Institutional Conditions ◽  
Material Resources ◽  
Collection Data ◽  
Children With Chronic Conditions

ABSTRACT The study aimed to understand the intervening conditions in the interactions of nurses in managing the nursing care for hospitalized children with chronic conditions. To do that, it used Complex Thinking and Grounded Theory as theoretical and methodological references, respectively. Eighteen subjects participated in the study, pooled into three sample groups: nurses, nursing technicians, and their families. A semi-structured interview was used for data collection. Data analysis followed three stages of coding: open, axial, and selective. The study considered family members, professional experience, the physical structure of the unit, human and material resources, good mood, job satisfaction, confidence, dialogue, and empathy as conditions that influence nurses' interactions in care management. It found that subjective, cognitive, socio-cultural and institutional conditions influence the interactions of nurses, creating order/disorder in nursing care management.

scholarly journals Establishing action/interaction strategies for care delivery to hospitalized children with chronic conditions

2015 ◽  
Vol 19 (2) ◽  
Author(s):  
Thiago Privado da Silva ◽  
Marcelle Miranda da Silva ◽  
Leila Milman Alcantara ◽  
Ítalo Rodolfo Silva ◽  
Joséte Luzia Leite
Keyword(s):  
Chronic Conditions ◽  
Care Delivery ◽  
Hospitalized Children ◽  
Children With Chronic Conditions

scholarly journals Guarantee of the social rights of children with chronic conditions: reinventing care towards civil rights

2021 ◽  
Vol 74 (suppl 4) ◽  
Author(s):  
Tatiana Silva Tavares ◽  
Kênia Lara Silva ◽  
Regina Garcia de Lima ◽  
Elysângela Dittz Duarte
Keyword(s):  
Civil Rights ◽  
Critical Discourse Analysis ◽  
Chronic Conditions ◽  
Family Members ◽  
Social Institutions ◽  
Public Health Education ◽  
The Social ◽  
Multiple Case ◽  
Children With Chronic Conditions

ABSTRACT Objective: To analyze the experiences of families in the exercise of the rights of children with chronic conditions in public health, education and social assistance institutions. Method: ethnographic multiple case study, with qualitative approach, following the theoretical approach of Boaventura Santos. Experiences of the families of these children in a city were studied through interviews with family members, managers and professionals from social institutions (35), participant observations in social spaces (13) and creation of eco-maps (3). Critical Discourse Analysis was performed. Results: the offer of services is lower than the demand, and exclusion processes persist. Given the hegemony of neoliberal and normality ideologies, meetings between family members and professionals revealed obstacles to civil rights; however, when these ideologies were challenged, the realization of their rights was enhanced. Final considerations: the care to promote civil rights requires family members, managers and professionals to develop subjectivities that overcome neoliberal and normality ideologies, recognizing these children as subjects of law.

scholarly journals Cuidado à família da criança com doença crônica

2018 ◽  
Vol 12 (5) ◽  
pp. 1397
Author(s):  
Jessica Cardoso Vaz ◽  
Viviane Marten Milbrath ◽  
Ruth Irmgard Bärtschi Gabatz ◽  
Fábio Reis Krug ◽  
Bárbara Hirschmann ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Chronic Diseases ◽  
Chronic Conditions ◽  
Integrative Review ◽  
Virtual Library ◽  
Pediatric Nursing ◽  
Level Of Evidence ◽  
Families With Children ◽  
Children With Chronic Conditions

RESUMOObjetivo: conhecer o que vem sendo produzido sobre o cuidado à família da criança com doença crônica. Método: revisão integrativa que buscou conhecer as publicações dos últimos 10 anos nas bases de dados MEDLINE, LILACS, BDENF, INDEX PSICOL e na biblioteca virtual SciELO. Após a leitura dos artigos selecionados, foram analisados os dados dos estudos referentes à autoria, objetivos, ano de publicação, método e nível de evidência. Resultados: com base nos achados, foram definidas duas categorias temáticas << Enfrentando o diagnóstico da doença crônica, mudança de hábitos e reorganização familiar >> e << Rotinas de cuidado das famílias com crianças com condição crônica >>. Conclusão: as famílias das crianças com doença crônica são afastadas de suas rotinas, muitas vezes, perdendo o controle sobre suas vidas. Acredita-se que se a família for bem informada sobre a patologia e empoderada para os cuidados à criança, esta poderá desenvolver autonomia sobre a organização da sua vida. Descritores: Família; Criança; Doença Crônica; Empatia; Enfermagem Pediátrica; Revisão.ABSTRACT Objective: to know what has been produced about the care provided for families of children with chronic disease. Method: integrative review that sought to survey the publications of the last 10 years in the MEDLINE, LILACS, BDENF, INDEX PSICOL databases and in the virtual library SciELO. After reading the selected articles, we analyzed data of the studies regarding authorship, objectives, year of publication, method and level of evidence. Results: the findings led to two thematic categories << Facing the diagnosis of a chronic disease, change of habits and family reorganization >> and << Care routines of families with children with chronic conditions >>. Conclusion: Families of children with chronic diseases have their routines modified, often losing control over their lives. We believe that if families are well informed about the pathology and if they are empowered to care for the child, they will be able to develop autonomy over the organization of their lives. Descriptors: Family; Child; Chronic disease; Empathy; Pediatric Nursing; Review.RESUMEN Objetivo: conocer lo que viene siendo producido sobre el cuidado a la familia del niño con enfermedad crónica. Método: revisión integradora que buscó conocer las publicaciones de los últimos 10 años en las bases de datos MEDLINE, LILACS, BDENF, INDEX PSICOL y en la biblioteca virtual SciELO. Después de la lectura de los artículos seleccionados, fueron analizados los datos de los estudios referentes a la autoría, objetivos, año de publicación, método y nivel de evidencia. Resultados: con base en los hallados, fueron definidas dos categorías temáticas << Enfrentando el diagnóstico de la enfermedad crónica, cambio de hábitos y reorganización familiar >> y << Rutinas de cuidado de las familias con niños con condición crónica >>. Conclusión: las familias de los niños con enfermedades crónica son alejados de sus rutinas, muchas veces, perdiendo el control sobre sus vidas. Se cree que si la familia fuera bien informada sobre la patología y empoderada para los cuidados al niño, esta podrá desarrollar autonomía sobre la organización de su vida. Descriptores: Familia; Niño; Enfermedad Crónica; Empatía; Enfermería Pediátrica; Revisión.

Monitoring and Evaluating Managed Care for Children With Chronic Illnesses and Disabilities

PEDIATRICS ◽  
1996 ◽  
Vol 98 (5) ◽  
pp. 952-958 ◽  
Author(s):  
Paul W. Newacheck ◽  
Ruth E. K. Stein ◽  
Deborah Klein Walker ◽  
Steven L. Gortmaker ◽  
Karen Kuhlthau ◽  
...  
Keyword(s):  
Managed Care ◽  
Chronic Conditions ◽  
Monitoring And Evaluation ◽  
Health Problems ◽  
Chronic Illnesses ◽  
Satisfaction With Care ◽  
Chronic Health ◽  
Children With Chronic Illnesses ◽  
Chronic Health Problems ◽  
Children With Chronic Conditions

Objective. Children with chronic illnesses and disabilities are increasingly enrolling in managed care arrangements. Yet, the rapid expansion of managed care has unknown consequences for children with chronic conditions and disabilities. As managed care is likely to become the predominant mode of medical practice for children with chronic health problems, information gained from a thorough assessment of existing managed care models could be helpful in indicating adjustments and modifications that could result in improved outcomes for this population. The purpose of this article is to outline a new strategy for collecting needed information on the effects of managed care on children with chronic health problems. Methods. We reviewed the literature on the effects of managed care on children with chronic conditions and disabilities. We identified key domains relevant to monitoring and evaluating managed care for this population. Results. Two research approaches can provide helpful information for assessing the effects of managed care on children with chronic conditions. First, a monitoring strategy could be pursued in which enrollment trends in managed care, enrollee perceptions of access and satisfaction with care, and other general indicators of outcomes would be tracked over time using inexpensive and rapid turnaround data sources. Second, an evaluative strategy could be pursued using experimental or quasiexperimental designs, in which outcomes across a variety of domains for children with chronic conditions in managed care are compared with: (a) outcomes for the same children before enrollment in managed care; or (b) outcomes for similar children remaining in traditional fee-for-service settings. Evaluation and monitoring strategies should focus on outcomes in a number of domains including: (1) access to care; (2) utilization of services; (3) quality of care; (4) satisfaction with care; (5) expenditures for care; (6) health outcomes; and (7) family impact. Conclusion. Assessing outcomes that result from enrollment in managed care for children with chronic health problems presents a formidable challenge. The research strategy outlined in this article presents one approach to meeting that challenge. The monitoring and evaluation strategies described here would require commitment of additional resources on the part of government, private foundations, and/or health plans. Given the paucity of existing information and the stakes for children with chronic conditions and their families, investment of added resources in a comprehensive monitoring and evaluation strategy is essential.

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